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Fundraising / Family Events!
Sunday May 19, 2013
12 noon – 4:00pm
Emily’s 3rd Annual Fundraiser to Benefit Team Sanfilippo
Gatelot Avenue Eleentary School
See Flyer for additional fun for kids and adults . (Yard Sale begins at 10am)
This event gets great reviews from everyine who has attended in the past, both adults and children!!
Tee it up at Sugarloaf!
SUGARLOAF TOWNSHIP — Golfers hit the links in Luzerne County Saturday to help find a cure for a rare disease that affects children.
About 120 golfers took part in the third annual Beat M.P.S. Golf Tournament at Sugarloaf Golf Club.
M.P.S. also known as Sanfilippo disease, is a disorder that causes progressive brain damage in children. Those with the disease are not expected to live into their teens.
The tournament raises money and awareness to help find a cure.
The event was organized by Carl Kapes, originally from the Hazleton area. Kapes has two sons with the rare disease. ….. read more here and watch video too! http://wnep.com/2012/10/01/teeing-it-up-for-a-good-cause/
Fundraiser Held For Ronkonkoma Girl with Rare Genetic Condition
The community rallied around Ronkonkoma’s own Emily O’Connor, 6, and her family for a fundraiser held last week at Gatelot Avenue Elementary School.
It was to raise money for Sanfilippo syndrome, the rare and fatal genetic condition in which Emily is afflicted. Funds generated will go to Team Sanfilippo, a non-profit medical research foundation started by a group of parents with the mission of funding potential therapies, and cures for this little known malady.
Read more here….http://sachem.patch.com/articles/fundraiser-held-for-ronkonkoma-girl-with-rare-genetic-condition