Parents united to find a cure
  • Home
  • About Us
    • Mission Statement
    • Our Goal
    • Board of Directors
    • Scientific and Research Advisory Board
    • Strategic Plan
    • Financial Statement
    • What is Sanfilippo Syndrome?
    • Contact Us
  • How You Can Help
    • Donate
    • Host or Attend an Event
    • Products and New Items for sale to promote awareness and serve families!
    • Become an Affiliate
      • Spinning Wheels Productions and Team Sanfilippo Collaboration
  • Research
    • Research Projects
      • Research – Australia
      • Research – Canada
      • Research – France and Netherlands
      • Research – Italy
      • Research – Poland
      • Research – Spain
      • Research – United Kingdom
      • Research – United States
    • Request for Proposals
  • Therapies and Upcoming Treatments
  • Grants
  • News
    • Gene Therapy
    • Press Releases
    • Community News
    • Resource Links
  • Events

Fundraising / Family Events!

March 6, 2013 by PattyT

 

Sunday May 19, 2013

12 noon – 4:00pm

Emily’s 3rd Annual Fundraiser to Benefit Team Sanfilippo

Gatelot Avenue Eleentary School

See Flyer for additional fun for kids and adults . (Yard Sale begins at 10am) 

This event gets great reviews from everyine who has attended in the past, both adults and children!!


Tee it up at Sugarloaf!

SUGARLOAF TOWNSHIP — Golfers hit the links in Luzerne County Saturday to help find a cure for a rare disease that affects children.

About 120 golfers took part in the third annual Beat M.P.S. Golf Tournament at Sugarloaf Golf Club.

M.P.S. also known as Sanfilippo disease, is a disorder that causes progressive brain damage in children. Those with the disease are not expected to live into their teens.

The tournament raises money and awareness to help find a cure.

The event was organized by Carl Kapes, originally from the Hazleton area. Kapes has two sons with the rare disease. ….. read more here and watch video too! http://wnep.com/2012/10/01/teeing-it-up-for-a-good-cause/

 

How You Can Help

There are many ways you can get involved in the great work of our organization:
  • Host or Attend an Event
  • Become an Affiliate
  • Make a Donation

Donate using PayPal or Credit Card

Donate using Network for Good

Learn More About Team Sanfilippo

Team Sanfilippo Foundation Brochure

To view the Team Sanfilippo Foundation Brochure click here.

Join Team Sanfilippo & Follow Us

Return to top of page
Site Map
© 2025 Team Sanfillipo • Log in