Time has been critical to help us get a new and promising treatment out for all kids. Unfortunately CoVID has delayed our trial from starting with the Trehalose IV. You all helped provide the funds to make that possible! Hopefully 2021 brings us better news.
Meanwhile we at TSF have funded another study on an oral substance that may be able to come to clinical trial in mid 2021 . Our kids need these treatments thru studies, as none of the other treatments have proved long term help yet, new funding is needed to push this trial forward! This should be able to move forward regardless of CoVID.
Please consider donating, reoccurring monthly donations, doing fundraisers with, auctions, whatever you are good at to help us help these kids!! The treatments we are pursuing is for ALL AGES… even with older more regressed kids! We need your help and everyone you can think of that can!
The faces of three young Sanfilippo girls in different stages of the disease. They just naturally got together on their own on this bench.. what a beautiful moment! No parent should have to watch their child slowly regress, suffer and die, won’t you please consider a donation to help pay for the drug to be made for the trials that are coming up right now! We want to be able to tell families with this diagnosis one day soon… “not to worry.. we have a cure, your child will live and not die!!! ”
Make a donation and help ensure that not another day is lost to children living with Sanfilippo Syndrome. Time is not their friend, every day matters in finding new treatments and a cure.
Do you shop on Amazon? Please follow this link and shop using “Amazon Smile” to have 0.5% of all your purchases going to Sanfilippo research through Team Sanfilippo.
AmazonSmile: You shop. Amazon gives. www.smile.amazon.com
Honor and Memorial Gift
Pay tribute to a loved one and make an in-honor or in-memorial donation today. Send us a memory about your loved and we’ll gladly make a post honoring your loved one with the community !
For those who wish to send checks for donations, you can do so by making them out to
Team Sanfilippo Foundation, / TSF Inc mailing to:
20 Lakewood Ave.
Ronkonkoma, NY 11779
TSF Inc. is a registered 501(c)3 Tax ID # 46-4027239
