Archives for March 2013
Illinois friends, teachers and family bring awareness and funds for Sanfilippo Syndrome!
I just wanted to share what a wonderful success we, Team Jake Elston had at selling t-shirts to raise awareness and how it became a great way to support Team Sanfilippo financially as well. We are teachers, friends and family of Jake Elston… 53 t-shirts were sold (which brought $380 in contributions) and three other individuals gave additionally ($220) for Team Sanfilippo; totaling $600 in donations/contributions-through two checks recently sent as well as an online donation.
Fundraising / Family Events!
Sunday May 19, 2013
12 noon – 4:00pm
Emily’s 3rd Annual Fundraiser to Benefit Team Sanfilippo
Gatelot Avenue Eleentary School
See Flyer for additional fun for kids and adults . (Yard Sale begins at 10am)
This event gets great reviews from everyine who has attended in the past, both adults and children!!
Tee it up at Sugarloaf!
SUGARLOAF TOWNSHIP — Golfers hit the links in Luzerne County Saturday to help find a cure for a rare disease that affects children.
About 120 golfers took part in the third annual Beat M.P.S. Golf Tournament at Sugarloaf Golf Club.
M.P.S. also known as Sanfilippo disease, is a disorder that causes progressive brain damage in children. Those with the disease are not expected to live into their teens.
The tournament raises money and awareness to help find a cure.
The event was organized by Carl Kapes, originally from the Hazleton area. Kapes has two sons with the rare disease. ….. read more here and watch video too! http://wnep.com/2012/10/01/teeing-it-up-for-a-good-cause/