Spirit Night to Honor the Memory of Mia Pruett!

May 8, 2013 – Spirit Night to Honor the Memory of Mia Pruett!
Dayton, Ohio! Come and eat WAFFES!!!
Spirit Night May 8 from 2-9 at the Waffle House on Colonel Glenn Highway in Dayton, OH. Anyone coming to “Eat for Mia Pruett” will have 25% of their proceeds donated to TS. The local media has contacted the waitresses and will be there. Please spread the word!”

Special bond of rescue dog and dying boy

Tennessee dad had a gut feeling that he could train the shepherd to help his son.

As nearly anyone who has adopted a dog or cat from a shelter can attest, there’s something special about a rescued pet; it’s as if the animal senses he’s been given a second chance at life. That’s certainly the case with Juno, a Belgian Malinois who was rescued from a shelter just days before she was to be euthanized. But since coming to live with her family in Alcoa, Tenn., Juno has taken on the role of rescuer to four-year-old Lucas Hembree. Lucas suffers from Sanfilippo syndrome. Read More

Natural History Study of Patients with MPS IIIB

Natural History Study of Patients With Mucopolysaccharidosis Type III (MPS IIIB, Sanfilippo Syndrome Type B)

The purpose of this study is to evaluate the natural course of disease progression in Mucopolysaccharidosis Type III (MPS IIIB) patients who are untreated to identify potential surrogate endpoints that may be utilized in future treatment trials of MPS IIIB using predefined assessments including standardized clinical, biochemical, neurocognitive, developmental, and imaging measures.

For more information, click here.