May 31, 2014 – Crawfish Boil for Nola Carter

Firehouse Saloon, 5930 Southwest Freeway, Houston, TX 77057

http://firehousesaloon.com

Nola, one year old, was recently diagnosed with Sanfilippo Syndrome A (MPSIIIA). Nola’s family hopes to see Nola have the opportunity to become the woman she was created to be. They are desperately hoping that they will not lose her to this devastating disorder.

Team Sanfilippo is diligently working to make their hope & the hope of so many other parents of children with Sanfilippo Syndrome a reality. They are so grateful for the work that TSF has accomplished so far & want to do whatever they can to fund the medical research and clinical trials that could possibly treat or cure Sanfilippo Syndrome.

For more information email cdstlaurent@yahoo.com

Thursday May 15th, 2014 – Sanfilippo Awareness Golf Tournament 12 pm noon!! Shotgun!

Back Creek Gold Club, 101 Back Creek Drive, Middletown, Delaware 19709

https://www.facebook.com/events/285990021548708/?ref_dashboard_filter=upcoming

Back Creek Golf Club has been voted #1 in Delaware and is on Golf Weeks TOP 100 places to play. Come join us to help finish the funding for the clinical trial for our children for the gene therapy that is approved now for our kids!!

Please join Carl’s family as they raise money to advance an upcoming gene therapy clinical trial at Nationwide Children’s Hospital in Columbus, OH that will provide a treatment for all the children affected by this disorder. Both of their boys have Sanfilippo Syndrome and will not live a very long life without this treatment.

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Corporate Sponsors :

Sponsorship Opportunities

1. Tournament Sponsorship Opportunities

Title Sponsor: $5,000 . . . . . Name and/or logo in title of the event as well as on the golf shirt giveaway to each golfer and numerous signs throughout the event. Hole Sponsor: $1,000, $500 or $250 . . . . . Sign with name and/or logo on hole sponsored. Signs will be sized large, medium and small depending amount of donation.

Dinner & Awards Ceremony Sponsor: $1,000 . . . . . Name and/or logo on title and sign(s) for the dinner. SOLD!

Golf Cart Sponsor: $750 . . . . . Name and/or logo on all golf carts used by golfers in the event.

Practice Range Sponsor: $500 . . . . . Name and/or logo on sign(s) at practice range.

Putting Green Sponsor: $500 . . . . . Name and/or logo on sign(s) on putting green.

Hole-in-One Contest Sponsor: $500 . . . . . Name and/or logo on sign(s) for contest and at contest hole.

Closest to the Pin Sponsor: $500 . . . . . Name and/or logo on sign(s) for contest and at contest hole. SOLD!

Longest Drive Sponsor: $500 . . . . . Name and/or logo on sign(s) for contest and at contest hole. SOLD!

Putting Contest Sponsor: $500 . . . . . Name and/or logo on sign(s) for contest and at contest hole.

2. Team Sponsorship/Participation

Sign up a team of employees from your company to participate in the Golf Scramble. Your team can pre-register for the event below.

$600.00 . . . for up to 4 participants and your Corp. Name/Logo on a small sign at the event.

3. Donation Food, Beverages or Merchandise for Prizes and/or Silent Auction

Accepting donations of food, beverages, gifts and/or merchandise to be sold at the silent auction or to be raffled off the day of the event.

$1,000.00 worth . . . Corp. Name/Logo on large sign(s) at event.

$500 worth . . . Corp. Name/Logo on medium sign(s) at the event.

$250 or less worth . . . Corp. Name/Logo on small sign(s) at the event.

For more information on Sanfilippo Syndrome:

www.teamsanfilippo.org

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Yes, I would love to sign up to sponsor the Sanfilippo Awareness MPS Golf Scramble on May 15, 2014

Company Name: _____________________________________Contact: ____________________________

Address:__________________________________________________________PH # __________________

Hole Sponsorship $1,000 $500 $1 $250 Other $___________

Team Sponsorship $500

Merchandise Donation Item: ________________________ Value $___________

Make Checks Payable to Team Sanfilippo Foundation and mail to: Team Sanfilippo Golf Scramble, 3204 Romilly Road, Wilmington, DE 19810

January 20, 2014 – Villanova Teaming Up to Raise Awareness for Sanfilippo Syndrome at Jan. 20 Men’s Basketball Game

@ Wells Fargo Center

Villanova, PA

Press Release > http://www1.villanova.edu/villanova/media/pressreleases/2014/0110-1.html

To purchase tickets > http://www.villanova.com/tickets/m-baskbl-tickets.html

Villanova versus Creighton will be “Sanfilippo Syndrome Awareness Night,” with several planned activities aimed at raising awareness for the rare disorder

December 19, 2013 ~ An Evening For Eliza!

22nd Annual DDR CHRISTMAS PARTY!!

The Chase Center on the Riverfront

Wilmington, DE

Not too late to Attend or Donate!

Emily’s Dance 3rd Annual Fundraiser for TSF!!

Sunday May 19, 2013

12 noon – 4:00pm

Emily’s 3^rd Annual Fundraiser to Benefit Team Sanfilippo

Gatelot Avenue Elementary School

Ronkonkoma~ Long Island, NY

See Flyer for additional fun for kids and adults. (Yard Sale begins at 10am)