Parents united to find a cure
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What is Sanfilippo Syndrome?

Sanfilippo syndrome is a genetic error of metabolism. It is a mucopolysaccharidoses, an MPS disorder, MPSlll. Mucopolysaccharides are long chains of sugar molecules, which are used in building connective tissues. When the body is finished using these molecules, it breaks them down, with enzymes, and disposes of them. Children with Sanfilippo syndrome are missing or are deficient in the enzyme to break down the molecules. Instead, the body stores these molecules in the cells. This storage causes progressive damage.
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How You Can Help Team Sanfilippo

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What's Happening

Starting fundraisers and activities again now that CoVid restrictions are winding down

During the past 15 months we have chosen to respect the hardships of many families and communties during the CoVid 19 lockdowns and many who didn't have a steady source of income Our clinical trial of trehalose was delayed and hopefully will be back on track soon as hospitals are fully opened up and IRB's are being approved etc Meanwhile we have another trail coming up to fund as well So let the fundraisers and activities begin TSF will have another announcement coming soon that families may be excitied about ! Meanwhile there are two fundraisers scheduled next month Washington State for the bikers and friends of bikers and KY for the Sales of all things good, check the events page for details ! ...Read More

PRESS RELEASES

        January 17, 2020 Today we are excited to announce that Kathy Nay will be joining our Team as a Board Member Kathy has been a long-time supporter of TSF ...Learn More

COMMUNITY NEWS

TSF has ongoing campaigns with tee shirts and sweat shirts for Sanfilippo families supporting Sanfilippo and personalized awareness, as well as ribbons and bows, soldier garden flags, angel garden ...Learn More

Scientific Board

Our Scientific Research Advisory Board was established to provide Team Sanfilippo scientific advice, guidance and constructive criticism in our exploration of innovative research projects to fund. Learn More

Board of Directors

Our volunteer Board of Directors are mostly parents of children with Sanfilippo Syndrome who organized with one goal in mind, “to provide a better life and ultimately a cure for Sanfilippo Syndrome.” Learn More

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