September 15 – 30, 2015
CANS ACROSS AMERICA FOR SANFILIPPO SYNDROME!
If you’d like an easy to do fundraiser to help provide funding for the approved gene therapy drug to be made for our kids who are younger, and also to help families if needed, get to and from the clinic location, this is an easy fundraiser anyone can do! It will cost approx. 250k per child to receive the treatment. That’s a lot of money per child! Drug companies will not fund this until the trials are over for our kids and results are in. So please help us make this happen. Every dollar counts!
All you need is an empty coffee can or similar can that you tape a label around that is 8.5″ x 14″, then talk to a local business you frequent often, your workplace reception desk or cafeteria, school office etc.. the places are only limited by your imagination. Ask the manager or owner to kindly keep an eye on the can and you stop in weekly to pick up the donations.
We are trying this for two weeks, but, if business owners or whoever have no issue with leaving the can for longer that is wonderful. Please combine all funds into one check and send to
Team Sanfilippo Foundation,
PO Box 1152
Ronkonkoma, NY 11779
People can also write a check for the can if they wish to donate larger amounts vs just their change. One business we used a while back actually used the can to trade in their paper dollars to get change for their register at times. So it can help a business as well in the respect for convenience. Here are links to the labels, the black and white one is actually of 3 of the Sanfilippo children back in June, the other pic is a random color of children of playing.
http://teamsanfilippo.org/wp-content/uploads/2015/08/cans-across-bw.pdf. Black and white label