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20 Lakewood Avenue, Ronkonkoma, NY 11779
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  • Who We Are
    • Our Mission
    • Our Goal
    • Board of Directors
    • Scientific and Research Advisory Board
  • Understanding Sanfilippo Syndrome
    • What is Sanfilippo Syndrome
    • Attenuated
    • Sanfilippo Causes and Symptoms
    • Sanfilippo Syndrome Types
    • Sanfilippo Prognosis
    • Help Find A Cure
  • Sanfilippo Families
    • Featured Stories
  • Care and Treatment
    • Sanfilippo Syndrome Clinical Care Guidelines
  • Research & Impact
    • Strategic Plan
    • Current Research & Clinical Trials
      • Team Sanfilippo Trials
      • Enzyme Replacement and Pharmacological Therapies
      • Gene Therapy Developments
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You Are Not Alone:
Join the Team Sanfilippo Family

At Team Sanfilippo Foundation, we believe in the power of community and collective action. We encourage you to join us in educating others about Sanfilippo Syndrome, raising awareness, and supporting our mission through fundraising and donations.

Every action, big or small, makes a profound difference for children with Sanfilippo Syndrome.

Tragically, many children suffering from Sanfilippo symptoms remain undiagnosed or are misdiagnosed. If you know a family whose child is experiencing unexplained developmental regression or neurological symptoms, kindly direct them to our resources. Early diagnosis is critical. We are here to help guide with answers and support.

We understand the unique challenges many families face after a Sanfilippo diagnosis. We are relentlessly dedicated to accelerating the search for a cure, and our commitment is unwavering. To date, we have proudly invested more than 6 million in groundbreaking treatments, vital research, and clinical trials. We aim to bring hope and help to families like yours.

Science is advancing rapidly, bringing us closer to breakthroughs every day.

We invite you to stay connected with our progress by following our Facebook page and the press release page for the latest developments and updates.

Help Find a Cure
Support Ambroxol Trial

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Team Sanfilippo is a nonprofit foundation dedicated to funding research and supporting families affected by Sanfilippo Syndrome.

+1 (518) 879-6571

contact@teamsanfilippo.com

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