Real Stories. Real Journeys. Real Hope.
Our Life with Sanfilippo
Our Life with Sanfilippo: Ryder, Vera, Tessa, and me. Ryder—that’s my boy. He’s 12 years old now and was diagnosed with Sanfilippo Syndrome Type B when he was just 2.
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Want to Share Your Story?
We’re always looking to highlight inspiring stories from families living with Sanfilippo Syndrome.
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