Not found, error 404
The page you are looking for no longer exists. Perhaps you can return back to the site's homepage and see if you can find what you are looking for. Or, you can try finding it with the information below.
Pages:
- Become a Hero Among Us
- Become A Hero Among Us: Donor Form
- Become A Hero Among Us: Sign Up Form
- Become an Affiliate
- Board of Directors
- Categories
- Chase Giving Campaign 2012- Congratulations to The Will Luthcke Foundation
- Contact Us
- Donate
- Donate
- Events – Event Calendar
- Financial Statement
- Grants
- Hershey – Sanfilippofest IV 2023
- Locations
- Mission Statement
- My Bookings
- Our Goal
- Products and New Items for sale to promote awareness and serve families!
- Request for Proposals
- Resource Links
- Scientific and Research Advisory Board
- Site Map
- Slideshow Photos
- Slideshow Photos
- Slideshow Photos
- Strategic Plan
- Thank You
- What is Sanfilippo Syndrome?
- Abeona Therapeutics Announces Publication of Preclinical Data Supporting Clinical Translation of MPS IIIA Gene Therapy
Categories:
Authors:
- KevinO (1)
- PattyT (34)
- Team Sanfilippo (32)
Monthly:
- January 2024
- June 2021
- January 2020
- March 2017
- September 2016
- November 2015
- September 2015
- July 2015
- May 2015
- April 2015
- August 2014
- July 2014
- May 2014
- January 2014
- December 2013
- October 2013
- September 2013
- August 2013
- May 2013
- April 2013
- March 2013
- January 2013
- October 2012
- September 2012
- August 2012
- July 2012
- March 2012
- February 2012
Recent Posts:
- Sanfilippo Fest IV – Hershey Lodge October 2023
- Starting fundraisers and activities again now that CoVid restrictions are winding down
- Merchandise updates to support Sanfilippo Awareness!
- Team Sanfilippo Update November 28, 2019
- Inaki’
- Research Projects – United States
- United To Find A CURE
- 1930601_39043370559_5612_n
- 10406426_10152671862865141_1441181375080107246_n
- joans-group-game-copy
- joans-group-game-copy
- 10406426_10152671862865141_1441181375080107246_n
- 1930601_39043370559_5612_n
- 10406426_10152671862865141_1441181375080107246_n
- joans-group-game-copy
- joans-group-game-copy
- 10406426_10152671862865141_1441181375080107246_n
- 1930601_39043370559_5612_n
- Cans Across America For Sanfilippo Syndrome!
- slide19
- slide19
- slide10
- Guest Bartending Night At Kelly’s Logan House
- 1st Annual Bike Run
- Collect Old Shoes Fund Gene Therapy
- Kali-ki Wisdom School’s 4th Annual Community Reiki Give
- Team Nola Charity Gold Tournament
- Crawfish Boil for Nola Carter
- Sanfilippo Awareness Golf Tournament
- Villanova Teaming Up to Raise Awareness for Sanfilippo Syndrome
- May 12, 2014 – Sanfilippo Syndrome, FDA Orphan Designations for Gene Therapy for Type A and B
- An Evening For Eliza!
- December 19, 2013 ~ An Evening For Eliza!
- 4th Annual Beat MPS Golf Scramble
- 741
- 5k Run and Walk
- Do you Shop Amazon? If so you can help!!
- Fundraiser/Comedy Night for Jared’s Fund
- Emily’s Dance 3rd Annual Fundraiser for TSF!!
- Gene Therapy Coming for 2014! See how you can help!
- Gene Therapy, Trials for Sanfilippo A and B children 2014!!
- Spirit Night to Honor the Memory of Mia Pruett!
- Illinois friends, teachers and family bring awareness and funds for Sanfilippo Syndrome!
- Fundraising / Family Events!
- BioMarin Acquires Zacharon Pharmaceuticals
- Teeing It Up For A Good Cause
- Chase Giving Campaign 2012 – Congratulations to The Will Luthcke Foundation!
- Good Samaritans turn tough situation into blessing for Blount family
- I Tried It: Mount Kilimanjaro Workout with Preston and Steve’s Nick McIlwain
- Carl Kapes and Nick McIlwain of WMMR 93.3FM didn’t even know each other till recently
- Carl Kapes Climbs Mount Kilimanjaro for Team Sanfilippo Foundation
- Fundraiser Held For Ronkonkoma Girl with Rare Genetic Condition
- Weight Loss / Fitness Challenge to a Healthier You!
- Special bond of rescue dog and dying boy
- Natural History Study of Patients with MPS IIIB
- Research Projects – United Kingdom
- Research Projects – Spain
- Research Projects – Poland
- Research Projects – Italy
- Research Projects – France and Netherlands
- Research Projects – Canada
- Research Projects – Australia
- Charities Unite To Fund Research
- Top Vote Getter in Pepsi Grant Challenge
- In the News – Capes Family
- Team Sanfilippo Wins Top Prize
- Shire Sanfilippo Syndrome Study