Welcome to Team Sanfilippo Hero Pages! Creating a Hero Page provides an opportunity for your family to share your unique story and to help you raise awareness for Sanfilippo Syndrome. Your Hero Page can be in Honor or in Memory of someone with Sanfilippo Syndrome and can be used to help raise funds for a cure.
Our hope is that through your Hero Page you are able to share your rare disease story with loved ones, friends, colleagues, doctors, legislators and anyone that wants to learn more about Sanfilippo Syndrome.
Building your own webpage for your loved one it easy! Ready to get started?
Begin by registering for your new page! Register now.
Want to visit other Hero Pages? Please scroll through the list of families and friends that have a Hero Page below and click the link to access their page or you can search for your Hero by typing in their name and clicking the Search button. The Heroes are listed in alphabetical order by last name.