May 31, 2014 – Crawfish Boil for Nola Carter
Firehouse Saloon, 5930 Southwest Freeway, Houston, TX 77057
Nola, one year old, was recently diagnosed with Sanfilippo Syndrome A (MPSIIIA). Nola’s family hopes to see Nola have the opportunity to become the woman she was created to be. They are desperately hoping that they will not lose her to this devastating disorder.
Team Sanfilippo is diligently working to make their hope & the hope of so many other parents of children with Sanfilippo Syndrome a reality. They are so grateful for the work that TSF has accomplished so far & want to do whatever they can to fund the medical research and clinical trials that could possibly treat or cure Sanfilippo Syndrome.
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