Sat Aug 09, 2014 – Mon Sep 22, 2014
16822 Whitewater Falls Ct.Houston, TX 77059
This money will be used to fund medical research, and clinical genetic trials scheduled to start in March 2015.
*Shoes are shipped to under-developed countries, where they are recycle via funds2org.com
To View the event page click here, this is ongoing thru Sept. 22, 2014 and is easy to do.
Sunday August 24, 2014
1141 Division St.
Napa, CA 94559
Phone/fax (707) 258-1426
Come enjoy and relax, if you never experienced this, give it a try! You won’t be disappointed,
July 14, 2014 – Team Nola Charity Gold Tournament
Golfcrest County Club - (281) 485.4323
2509 Country Club Drive, Pearland, Texas 77581
SAVE THE DATE, Registration information to come!
May 31, 2014 - Crawfish Boil for Nola Carter
Firehouse Saloon, 5930 Southwest Freeway, Houston, TX 77057
Nola, one year old, was recently diagnosed with Sanfilippo Syndrome A (MPSIIIA). Nola’s family hopes to see Nola have the opportunity to become the woman she was created to be. They are desperately hoping that they will not lose her to this devastating disorder.
Team Sanfilippo is diligently working to make their hope & the hope of so many other parents of children with Sanfilippo Syndrome a reality. They are so grateful for the work that TSF has accomplished so far & want to do whatever they can to fund the medical research and clinical trials that could possibly treat or cure Sanfilippo Syndrome.
For more information email firstname.lastname@example.org
Thursday May 15th, 2014 – Sanfilippo Awareness Golf Tournament 12 pm noon!! Shotgun!
Back Creek Gold Club, 101 Back Creek Drive, Middletown, Delaware 19709
Back Creek Golf Club has been voted #1 in Delaware and is on Golf Weeks TOP 100 places to play. Come join us to help finish the funding for the clinical trial for our children for the gene therapy that is approved now for our kids!!
Please join Carl’s family as they raise money to advance an upcoming gene therapy clinical trial at Nationwide Children’s Hospital in Columbus, OH that will provide a treatment for all the children affected by this disorder. Both of their boys have Sanfilippo Syndrome and will not live a very long life without this treatment.
Corporate Sponsors :
1. Tournament Sponsorship Opportunities
Title Sponsor: $5,000 . . . . . Name and/or logo in title of the event as well as on the golf shirt giveaway to each golfer and numerous signs throughout the event. Hole Sponsor: $1,000, $500 or $250 . . . . . Sign with name and/or logo on hole sponsored. Signs will be sized large, medium and small depending amount of donation.
Dinner & Awards Ceremony Sponsor: $1,000 . . . . . Name and/or logo on title and sign(s) for the dinner. SOLD!
Golf Cart Sponsor: $750 . . . . . Name and/or logo on all golf carts used by golfers in the event.
Practice Range Sponsor: $500 . . . . . Name and/or logo on sign(s) at practice range.
Putting Green Sponsor: $500 . . . . . Name and/or logo on sign(s) on putting green.
Hole-in-One Contest Sponsor: $500 . . . . . Name and/or logo on sign(s) for contest and at contest hole.
Closest to the Pin Sponsor: $500 . . . . . Name and/or logo on sign(s) for contest and at contest hole. SOLD!
Longest Drive Sponsor: $500 . . . . . Name and/or logo on sign(s) for contest and at contest hole. SOLD!
Putting Contest Sponsor: $500 . . . . . Name and/or logo on sign(s) for contest and at contest hole.
2. Team Sponsorship/Participation
Sign up a team of employees from your company to participate in the Golf Scramble. Your team can pre-register for the event below.
$600.00 . . . for up to 4 participants and your Corp. Name/Logo on a small sign at the event.
3. Donation Food, Beverages or Merchandise for Prizes and/or Silent Auction
Accepting donations of food, beverages, gifts and/or merchandise to be sold at the silent auction or to be raffled off the day of the event.
$1,000.00 worth . . . Corp. Name/Logo on large sign(s) at event.
$500 worth . . . Corp. Name/Logo on medium sign(s) at the event.
$250 or less worth . . . Corp. Name/Logo on small sign(s) at the event.
For more information on Sanfilippo Syndrome:
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Yes, I would love to sign up to sponsor the Sanfilippo Awareness MPS Golf Scramble on May 15, 2014
Company Name: _____________________________________Contact: ____________________________
Address:__________________________________________________________PH # __________________
Hole Sponsorship $1,000 $500 $1 $250 Other $___________
Team Sponsorship $500
Merchandise Donation Item: ________________________ Value $___________
Make Checks Payable to Team Sanfilippo Foundation and mail to: Team Sanfilippo Golf Scramble, 3204 Romilly Road, Wilmington, DE 19810
January 20, 2014 – Villanova Teaming Up to Raise Awareness for Sanfilippo Syndrome at Jan. 20 Men’s Basketball Game
@ Wells Fargo Center
To purchase tickets > http://www.villanova.com/tickets/m-baskbl-tickets.html
Villanova versus Creighton will be “Sanfilippo Syndrome Awareness Night,” with several planned activities aimed at raising awareness for the rare disorder
December 19, 2013 ~ An Evening For Eliza!
22nd Annual DDR CHRISTMAS PARTY!!
The Chase Center on the Riverfront
Not too late to Attend or Donate!
Saturday, October 5, 2013
4th Annual Beat MPS Golf Scramble
Sugarloaf Golf Club, Sugarloaf, PA
To read and or print the father’s letter click here> TS_Corporate_sponsor_letter_and_form_2013
5k Run and Walk
47 Elm Street, Everett, MA
Sunday May 19, 2013
12 noon – 4:00pm
Emily’s 3rd Annual Fundraiser to Benefit Team Sanfilippo
Gatelot Avenue Elementary School
Ronkonkoma~ Long Island, NY
See Flyer for additional fun for kids and adults. (Yard Sale begins at 10am)