Events

July 14, 2014 – Team Nola Charity Gold Tournament

Golfcrest County Club -  (281) 485.4323

2509 Country Club Drive, Pearland, Texas 77581

http://www.golfcrestcountryclub.com

SAVE THE DATE, Registration information to come!

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January 20, 2014 – Villanova Teaming Up to Raise Awareness for Sanfilippo Syndrome at Jan. 20 Men’s Basketball Game

@ Wells Fargo Center

Villanova, PA

Press Release > http://www1.villanova.edu/villanova/media/pressreleases/2014/0110-1.html

To purchase tickets  > http://www.villanova.com/tickets/m-baskbl-tickets.html

Villanova versus Creighton will be “Sanfilippo Syndrome Awareness Night,” with several planned activities aimed at raising awareness for the rare disorder

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December 19, 2013  ~ An Evening For Eliza!

22nd Annual DDR CHRISTMAS PARTY!!

The Chase Center on the Riverfront

Wilmington, DE

Not too late to Attend or Donate!

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Saturday, October 5, 2013  

4th Annual Beat MPS Golf Scramble

Sugarloaf Golf Club, Sugarloaf, PA   

To read and or print the father’s letter click here>   TS_Corporate_sponsor_letter_and_form_2013

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 5k Run and Walk

Benefit’s Jared’s Foundation and Team Sanfilippo
September 15, 2013 
Number Pick Up  8:00 A.M.
Race Starts at 10:00 A.M
The Connor family invites you to join them at the starting line for the fourth annual running of Jared’s Run to raise money for their son, Jared and his fight against Sanfilippo Syndrome. Sanfilippo Syndrome is a terminal genetic disorder affecting children. These children are born healthy but over time lose their ability to walk, talk and even eat. Money raised from this event will help the Connor family give their son access to the best vitamin and dietary supports as well as participation in experimental treatments that are not covered by insurance. Additional funds will be donated to Team Sanfilippo to support research into Sanfilippo treatments and eventually a cure.
Team Sanfilippo Foundation is a non profit organization focused on finding a treatment for Sanfilippo Syndrome. It’s mission is to find potential therapies that can be tested clinically in the near future. They are working hard to advance research, education and improve the quality of life for the children affected by this disorder. They are dedicated to bringing a treatment to these suffering children within their lifetime.
REGISTRATION
Online Registration is $30.00 with no added service fee.
Online registration closes on September 14, 2013.
 Race Day Registraion is $30.00.
Race Day Number Pick-up from 8:00 to 9:30 A.M.
LOCATION
Everett Recreation Center

47 Elm Street, Everett, MA

First 100 registered racers receive a free long sleeve T-shirt!
Walkers are welcome!
Coffee and refreshments for all at the finish line.
  
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May 8, 2013 – Spirit Night to Honor the Memory of Mia Pruett!
Dayton, Ohio!   Come and eat WAFFES!!!
Spirit Night May 8 from 2-9 at the Waffle House on Colonel Glenn Highway in Dayton, OH. Anyone coming to “Eat for Mia Pruett” will have 25% of their proceeds donated to TS. The local media has contacted the waitresses and will be there. Please spread the word!” 
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May 11, 2013, – Somerville, MA
Come join the fun for a GREAT cause!!
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Emily’s Dance  3rd Annual Fundraiser for TSF!! 

  Sunday May 19, 2013

12 noon – 4:00pm

Emily’s 3rd Annual Fundraiser to Benefit Team Sanfilippo

Gatelot Avenue Elementary School

Ronkonkoma~ Long Island, NY

See Flyer for additional fun for kids and adults. (Yard Sale begins at 10am)

                                                          This event gets great reviews by all who have attended, both adults and children!!

 

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