Time is critical to help us get a new and promising treatment out for all kids. Shire and Biomarin have both pulled treatment trials out from our kids. Kids were showing stabilization, unfortunately this is what many large drug companies do when the patient population is RARE and tons of money will not be made off it. This why we at TSF are funding the treatment mentioned on our main page under “What’s Happening” WE NEED THIS TRAETMENT and 4 millions minimum to get I to trial! Please consider donating, reoccurring monthly donations, doing fundraisers, auctions, whatever you are good at to help us help these kids!! The treatment we are pursuing is for ALL AGES… starting with older more regressed kids! We need your help and everyone you can think of that can! It will be 16 month getting the drug made, but dollars are needed to start it now!
The faces of three young Sanfilippo girls in different stages of the disease. They just naturally got together on their own on this bench.. what a beautiful moment! No parent should have to watch their child slowly regress, suffer and die, won’t you please consider a donation to help pay for the drug to be made for the trials that are coming up right now! We want to be able to tell families with this diagnosis one day soon… “not to worry.. we have a cure, your child will live and not die!!! ”
Make a donation and help ensure that not another day is lost to children living with Sanfilippo Syndrome. Time is not their friend, every day matters in finding new treatments and a cure.
Do you shop on Amazon? Please follow this link and shop using “Amazon Smile” to have 0.5% of all your purchases going to Sanfilippo research through Team Sanfilippo.
AmazonSmile: You shop. Amazon gives. www.smile.amazon.com
Honor and Memorial Gift
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For those who wish to send checks for donations, you can do so by making them out to
Team Sanfilippo Foundation, and mailing to:
20 Lakewood Ave.
Ronkonkoma, NY 11779